I've been mentally busy lately but here's a quick update!
Tietzes is still an issue for me, the cold weather has made it alot worse. My advice to all sufferers is wrap up warm before you venture out in the cold!
I feel that doctors are just offering me the same drugs, injections etc, and for me they don't work. They may work for others though!
Heat is my biggest and most sucessful weapon against Tietzes, especially for kids I would reccomend those cuddly toys you can microwave, they really help and are cute at the same time!!!
My pain is still primarily on my right side, but I have been noticing twinges on my left side more and more lately!
Hope all followers are ok and I'm sorry I haven't been aorund to answer questions etc, I'm going to message osme people now!
Charlie
Thursday 31 December 2009
Monday 20 April 2009
an apology, a thankyou and an update!
Hi!
So firstly I'm so sorry for the lack of updates, I've been away filming for a few months and barely had enough time to sleep, let alone blog! But I will stay on top of this page now, I know I've said it before, but I mean it this time!!
Secondly a big THANKYOU! for all the nice comments and messages people have sent me, really appreciate them and I'm glad you like the blog! Also the survey answers are coming along nicely, I'm gonna start wading through them in the next few days.
So onto me, it's been an interesting few months rib wise, the injections back in January didn't really do anything, clearly its a treatment which just isn't going to work for me, so I think I am not going to try anymore of those.
I still have my constant low level pain, which fluctuates dependign on what I'm doing. Whilst iflming, I found the pain to be more achey than usual, especially when I was tired (which was most of the time!). Some times if I ran about too much it got really bad, same as when I got a little stressed!
I'm getting a lot less open about having Tietze's, people see it as a weakness, and therefore view me as a liability, which really annoys me, especially as I am trying to break into an industry that is pretty difficult to get into to!
So anyway, I'll be back to the specialist soon, I wonder what he'll throw at me next!
charlie
So firstly I'm so sorry for the lack of updates, I've been away filming for a few months and barely had enough time to sleep, let alone blog! But I will stay on top of this page now, I know I've said it before, but I mean it this time!!
Secondly a big THANKYOU! for all the nice comments and messages people have sent me, really appreciate them and I'm glad you like the blog! Also the survey answers are coming along nicely, I'm gonna start wading through them in the next few days.
So onto me, it's been an interesting few months rib wise, the injections back in January didn't really do anything, clearly its a treatment which just isn't going to work for me, so I think I am not going to try anymore of those.
I still have my constant low level pain, which fluctuates dependign on what I'm doing. Whilst iflming, I found the pain to be more achey than usual, especially when I was tired (which was most of the time!). Some times if I ran about too much it got really bad, same as when I got a little stressed!
I'm getting a lot less open about having Tietze's, people see it as a weakness, and therefore view me as a liability, which really annoys me, especially as I am trying to break into an industry that is pretty difficult to get into to!
So anyway, I'll be back to the specialist soon, I wonder what he'll throw at me next!
charlie
Tuesday 27 January 2009
injections, laughter and other such things
so tomorrow is my next trigger point injections, (bad times) but tonight im going to see Russell Brand (good times) but afterwards my ribs will undoubtedly be painful from all the laughing (bad times, again)
In other news 15 replies to the survey which is quite good, hopefully will get more over the next few days
will post again in the morning whilst doing the usual 'no eating before anaesthetic' thing.... no matter how much i eat before hand im always hungry again later!
charlie
In other news 15 replies to the survey which is quite good, hopefully will get more over the next few days
will post again in the morning whilst doing the usual 'no eating before anaesthetic' thing.... no matter how much i eat before hand im always hungry again later!
charlie
Monday 26 January 2009
Didn't sleep, surveys and more
Hey,
So I didn't sleep last night, I don't think it was particularly because of my ribs because they weren't being terrible. I do find that lack of sleep or being tired does aggrevate this sometimes.
So now I'm tired, but I have just looked to see if anyone has completed the survey and so far 6 people have. The survey has been online less than 24 hours so I'm quite pleased with that! Hopefully lots more people will fill it in soon.
I'm finding it really interesting reading people's results because the condition seems to vary so much from person to person. Also most people seem to suffer with it more on their right side, whereas mine is on my left side. I hope the survey replies keep coming in because i'm getting some really interesting results!
Charlie
So I didn't sleep last night, I don't think it was particularly because of my ribs because they weren't being terrible. I do find that lack of sleep or being tired does aggrevate this sometimes.
So now I'm tired, but I have just looked to see if anyone has completed the survey and so far 6 people have. The survey has been online less than 24 hours so I'm quite pleased with that! Hopefully lots more people will fill it in soon.
I'm finding it really interesting reading people's results because the condition seems to vary so much from person to person. Also most people seem to suffer with it more on their right side, whereas mine is on my left side. I hope the survey replies keep coming in because i'm getting some really interesting results!
Charlie
been posting links...
So I've posted links to this site and the survey all over the internet, I hope someone sees!
Going to bed now, I'm in quite a lot of pain rib wise, but im sure its just because my body knows its getting another round of injections on wednesday!
Night!
Charlie x
Going to bed now, I'm in quite a lot of pain rib wise, but im sure its just because my body knows its getting another round of injections on wednesday!
Night!
Charlie x
Sunday 25 January 2009
Tietze's/ costochondritis survey
http://FreeOnlineSurveys.com/rendersurvey.asp?sid=a8i8kjec2te3syd538183
Hey I decided to get this survey going so I can find out some more info for the website, if you could take the time to fill it in that would be great! Hopefully will get some interesting results!
Charlie
Hey I decided to get this survey going so I can find out some more info for the website, if you could take the time to fill it in that would be great! Hopefully will get some interesting results!
Charlie
Working towards a website
It's so important to get other people's input on this site, I have had the idea of collecting as many people's stories, treatment ideas and info as possible to be put into a website to help people who are newly diagnosed, or just looking for information.
As many of you probably know, it is really hard to find info online about this condition!
If you have anything you'd like me to include in the website, or would like to help out please email me on charlie_coombes@hotmail.com or comment below!
thanks!
Charlie x
As many of you probably know, it is really hard to find info online about this condition!
If you have anything you'd like me to include in the website, or would like to help out please email me on charlie_coombes@hotmail.com or comment below!
thanks!
Charlie x
Heat Patches
So Deep heat patches are (I think) one of the best ways to keep Tietze's and Costochondritis under control.
Heat seems to work really well at soothing aches and pains. I swear these things have got me through difficult days so many times.
They stay hot for about 6-8 hours, they don't smell and can stick discreetly to your skin under your clothes
I would thoroughly recommend trying them if you havn't already!!!
charlie
The "things which make my pain worse" list!
thought I'd post a list of stuff that makes my pain worse, would love to know if these things make it worse for other people!
:
Running and other exercise!
Laughing lots
Breathing in cold air (this might be the worst pain cause for me!)
walking far
shouting
breathing deeply
singing
driving a long way
carrying heavy things
Dancing
and some other stuff, I'll probably add to the list!
So what makes it bad for you?
charlie
:
Running and other exercise!
Laughing lots
Breathing in cold air (this might be the worst pain cause for me!)
walking far
shouting
breathing deeply
singing
driving a long way
carrying heavy things
Dancing
and some other stuff, I'll probably add to the list!
So what makes it bad for you?
charlie
Sorry for the neglect!!!
So I did set out for this to be an awesome powerhouse of Tietzes experience and info, obviously I completely forgot about this page!
But my best friend has just been diagnosed with Costochondritis, and it reminded me of this page, so all this week I'm going to update this and as long as I have Tietze's I promise I'll continue to update!
Charlie
p.s: oh I'm having more injections into my chest on wednesday, whether they will work, who knows!?
But my best friend has just been diagnosed with Costochondritis, and it reminded me of this page, so all this week I'm going to update this and as long as I have Tietze's I promise I'll continue to update!
Charlie
p.s: oh I'm having more injections into my chest on wednesday, whether they will work, who knows!?
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