Monday 20 April 2009

an apology, a thankyou and an update!

Hi!

So firstly I'm so sorry for the lack of updates, I've been away filming for a few months and barely had enough time to sleep, let alone blog! But I will stay on top of this page now, I know I've said it before, but I mean it this time!!

Secondly a big THANKYOU! for all the nice comments and messages people have sent me, really appreciate them and I'm glad you like the blog! Also the survey answers are coming along nicely, I'm gonna start wading through them in the next few days.

So onto me, it's been an interesting few months rib wise, the injections back in January didn't really do anything, clearly its a treatment which just isn't going to work for me, so I think I am not going to try anymore of those.

I still have my constant low level pain, which fluctuates dependign on what I'm doing. Whilst iflming, I found the pain to be more achey than usual, especially when I was tired (which was most of the time!). Some times if I ran about too much it got really bad, same as when I got a little stressed!

I'm getting a lot less open about having Tietze's, people see it as a weakness, and therefore view me as a liability, which really annoys me, especially as I am trying to break into an industry that is pretty difficult to get into to!

So anyway, I'll be back to the specialist soon, I wonder what he'll throw at me next!

charlie

9 comments:

  1. This syndrome sounds very unpleasant but the filming sounds exciting. Good luck with both. If you've been following my blog, I'm happy to tell you that Cut Short, which has been on other amazon sites around the world, is now on amazon.co.uk

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  2. Hi there!! How did the survey turn out? did you post the results? I've had costo for 2 1/2 years, all the best to you!! Keep going!

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  3. PS- my name is Lauren =)I found your blog from the cost facebook page. Thanks!

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  4. My daughter is 10 yrs. old and had tietze's diagnosed for about a year now. How old were you when this was fisrt diagnosed? Any words to a Mother on how to soothe or comfort a child in pain? Our doctor is not much help...

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  5. Is this in Door set, in Door Chester.

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  6. To the anonomous poster who is asking about how to help their daughter:

    Hiya, I really feel for your daughter, I was 16 when I first presented with symptoms, and can imagine how horrible it is for a 10 yr old. My advice would be to try and keep her spirits up, don't let her stop doing anything she loves because it hurts her to do it, because it can get you down if you do that!

    Maybe get her one of those microvaeable cuddly toys, they really really help to soothe the pain and they are very cute! I'm 19 and I love mine!!

    I hope she gets better, and i Hope this helps!!

    Charlie x

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  7. on the survey front, I had loads of results, just haven't had the itme to sort through them all and work them into something publishable! I will do soon I promise!!

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Would really like to hear your thoughts on the blog, or if you have any ideas/ comments it would all be greatly appreciated!